Accelsiors supports Rare Disease Day 2020
Rare Disease Day | 29 February, 2020
Accelsiors supports International Rare Disease Day which is held on the last day of February every year to raise awareness for the millions of people living with rare disease around the world and improve access to treatment and medical representation for individuals with rare diseases and their families.
The first Rare Disease Day was celebrated in 2008 on 29 February, a ‘rare’ date that happens only once every four years. Ever since then, Rare Disease Day has taken place on the last day of February, a month known for having a rare number of days. This year’s campaign focuses on the need to better coordinate all aspects of care to improve the lives of people living with a rare disease and puts rare disease patient stories in the spotlight. Please, discover more about this special event and the rare diseases at rarediseaseday.org.
Developing drugs and finding effective treatments for patients with rare diseases present one of the most scientifically complicated challenges for the medical world. 300 million people suffer from a rare disease. 70% of genetic rare diseases start in childhood and 1 in 20 people will live with a rare disease at some point in their life but only a few percentage of the known - over 6 000 - such diseases have any approved treatment.
For us at Accelsiors, this huge medical need is something that we fully embrace as a part of paving the way for future research. As a leader CRO in clinical development for a wide range of orphan disorders and rare diseases, we are committed to support Pharma industry in finding new, efficient and successful treatments and to give hope to rare disease patients all over the world.
Please, discover more about Accelsiors' expertise in special rare disease research areas, such as Hypothalamo Pituitary Disorders (HPDs) and Pediatrics or read more about our professional experience in clinical drug development!