Accelsiors supports Rare Disease Day
Rare Disease Day
28 February, 2019
Accelsiors supports International Rare Disease Day takes place on the last day of February each year to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
The first Rare Disease Day was celebrated in 2008 on 29 February, a ‘rare’ date that happens only once every four years. Ever since then, Rare Disease Day has taken place on the last day of February, a month known for having a ‘rare’ number of days. This year’s campaign focuses on the need to better coordinate all aspects of care to improve the lives of people living with a rare disease and puts rare disease patient stories in the spotlight. Watch the videos from the Rare Disease Day 2019 campaign at rarediseaseday.org/videos.
Developing drugs and finding effective treatments for patients with rare diseases present one of the most scientifically complicated challenges for the medical world. Millions of people suffer from a rare disease, 1 in 20 people will live with a rare disease at some point in their life but only a few percentage of the known,
over 6 000 such diseases have any approved treatment.
For us at Accelsiors, this huge medical need is something that we fully embrace as a part of paving the way for future research. As a leader CRO in clinical development for a wide range of orphan disorders and rare diseases, we are proud to support Pharma industry in finding new, efficient and successful treatments and to give hope to rare disease patients all over the world.